We measure the throughput rate of our registration and distribution activities like a factory assembly line. We forget they are human.
Assembly Line Time
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From the Blog on Consent
Leaving Consent to the point of data collection might not be the best idea
Consent mapping is part of business process mapping. We can become more efficient and improve the quality of consent, if we map it and measure it.
Information Provision, Consent, and Respect
Information provision, even in a time of a pandemic, doesn’t have to be shouting and domineering. We have a choice in our approach; we can be respectful.
‘Opt In’ to Aggregation
We should be moving to a place where patients, organisations, etc. can opt in to having their data (anonymised or not) added to the aggregated pool.
Is Decentralisation just offloading liability to the individual?
Reducing our risk and offloading liability is something most of us seek. So do organisations and companies; and they are using consent to do so.
Consent Proxies?
Could we create consent proxies? Have the community members nominate certain members to be able to ‘consent’ on behalf of others?
Shifting the Needle
Perhaps it helps if we ask, “what are we choosing to spend our time and money instead of this?” And then go deeper by asking ‘why have we made that choice?’
Consent: Compliance Approach or Something Desirable?
What would consent look like if it was something we sought after. If we applied a ‘beneficiary-centric’ lens to consent, would we behave differently?
Are privacy and consent 20th century terms?
As we become more digital in how we work with vulnerable people, privacy and consent are topics hot debated; but is trust a more important debate?