And then someone asks a question that stops us all. “How do we explain consent and data sharing to an elderly person struggling with dementia?”
From the Blog on Consent
We’ve been misled to think consent is meaningful or informed even though we don’t consider power dynamics.
Designing consent in an app or system doesn’t really work. Consent is a relational, trust, human activity not a yes/no tick box.
Here are a few things I came across this week which might inspire others. And we all know we need inspiring after this week.
Data protection impact assessments are essential. However, they are not a silver bullet. They make three assumptions.
Trust is often viewed as woolly, intangible, hard to measure, which it is, but that doesn’t mean it might just be the most important thing we have.
We can debate if informed and meaningful consent is a thing or even possible. Or we can go out of our way to be clear about what data is being collected, why, what we do with it, and what people's rights are. Not in fine print, but boldly, loudly, creatively,...
The recent events in Afghanistan are not just about Afghanistan, but rather about how we work and the ecosystem in which we work. Here are 10 things to do.
Good cheat sheets rarely contain ‘the’ answer, but rather are full of formulas or questions to help you remember. Here are two for consent and data sharing.